Huntington's Disease: Online Resources


Shari Mathewson, Regional Development Director - Upper Midwest
Huntington's Disease Society of America

Website Resources

Support Groups

Caring for someone with Huntington's Disease

  • Caregiver Media Group – Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.
  • Huntington’s Disease Lighthouse Families – Huntington’s Disease Lighthouse Families community pages offer a wealth of information for families affected by Huntington disease.


  • Huntington's Disease Society of America – The Huntington's Disease Society of America is a national, voluntary health organization dedicated to improving the lives of people with Huntington's disease and their families.
  • The HD Lighthouse – The HD Lighthouse strives to provide the latest research findings so families can become proactive, have hope for the future, make positive decisions and share experiences coping with the disease.
  • Hereditary Disease Foundation – The Hereditary Disease Foundation aims to cure genetic illness by supporting basic biomedical research.
  • National Institute of Neurological Disorders and Stroke - The National Institute of Neurological Disorders and Stroke seeks fundamental knowledge about the brain and nervous system to reduce the burden of neurological disease.
  • Huntington Study Group – The Huntington Study Group is a non-profit group of providers who aim to increase the knowledge of disease progression and treatment of the disease.
  • Genetics Home Reference – The Genetics Home Reference is the National Library of Medicine's website for information about genetic conditions and the genes or chromosomes related to those conditions.